Jen,
I'll be thinking about you, praying for you. A spinal tap isn't as bad as it sounds. The dread is so much worse than the actual thing. Keep that in mind. I've had a couple of them with no problem whatsoever, and I'm a big, big chicken when it comes to any sort of medical procedure.
I'm sorry things have been so bad for you! Hang in there and keep us posted.
CC